The 20 Best Danon Disease Doctors Near Me in Grand Rapids, MI

Find the Top Danon Disease Experts and Specialists

Last Updated: 04/28/2026

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MediFind found 6 doctor with experience in Danon Disease near Grand Rapids, MI. Of these, 3 are Advanced and 3 are Experienced.

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6 providers found
    Advanced in Danon Disease
    Pediatrics | Medical Genetics
    Advanced in Danon Disease
    Pediatrics | Medical Genetics

    Corewell Health Grand Rapids Hospitals Biochemical Genetics - 25 Michigan St NE

    25 Michigan Street Northeast, Suite 2100, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    8+ years
    Languages Spoken:
    English
    Offers Telehealth

    Jessica Priestley is a Pediatrics specialist and a Medical Genetics provider practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 8 years. Dr. Priestley is rated as an Advanced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 21 other conditions, according to our data. Her clinical expertise encompasses Fabry Disease, Biotinidase Deficiency, Ornithine Transcarbamylase Deficiency, and Multiple Sulfatase Deficiency. Dr. Priestley is board certified in American Board Of Medical Genetics And Genomics, American Board Of Medical Genetics And Genomics, and American Board Of Pediatrics.

    Advanced in Danon Disease
    Pediatric Neurology
    Advanced in Danon Disease
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    16+ years
    Languages Spoken:
    English
    Accepting New Patients

    Jena Krueger is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. She has been practicing medicine for over 16 years. Dr. Krueger is rated as an Advanced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 19 other conditions, according to our data. Her clinical expertise encompasses Spinal Muscular Atrophy (SMA), Primary Lateral Sclerosis, Spinal Muscular Atrophy Type 1, and Spinal Muscular Atrophy Type 2. Dr. Krueger is board certified in American Board Of Psychiatry And Neurology, Epilepsy - 2017 and American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2015. Dr. Krueger is currently accepting new patients.

    Experienced in Danon Disease
    Pediatric Neurology
    Experienced in Danon Disease
    Pediatric Neurology

    Helen DeVos Children's Hospital Neurology

    35 Michigan Street Northeast, Suite 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    32+ years
    Languages Spoken:
    English
    Accepting New Patients

    Steven Deroos is a Pediatric Neurologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 32 years. Dr. Deroos is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 29 other conditions, according to our data. His clinical expertise encompasses Cerebral Palsy, Spastic Diplegia Infantile Type, Moebius Syndrome, and Dandy-Walker Syndrome. Dr. Deroos is board certified in American Board Of Psychiatry And Neurology, Neurology With Special Qualification In Child Neurology - 2005. Dr. Deroos is currently accepting new patients.

    Learn about our expert tiers
    Advanced in Danon Disease
    Medical Genetics | Pediatrics
    Advanced in Danon Disease
    Medical Genetics | Pediatrics
    35 Michigan St NE Ste 3003, 
    Grand Rapids, MI 
     (0.9 miles away)
    Languages Spoken:
    English
    Accepting New Patients

    Stacie Adams is a Medical Genetics specialist and a Pediatrics provider practicing medicine in Grand Rapids, Michigan. Dr. Adams is rated as an Advanced provider by MediFind in the treatment of Danon Disease. She is also highly rated in 20 other conditions, according to our data. Her clinical expertise encompasses Propionic Acidemia, Classic Galactosemia, Biotinidase Deficiency, and Galactose Epimerase Deficiency. Dr. Adams is currently accepting new patients.

    Experienced in Danon Disease
    Pediatric Cardiology
    Experienced in Danon Disease
    Pediatric Cardiology

    Helen DeVos Children's Hospital Congenital Heart Center

    25 Michigan Street Northeast, Suite 4200, 
    Grand Rapids, MI 
     (0.9 miles away)
    Experience:
    39+ years
    Languages Spoken:
    English

    Jeffrey Schneider is a Pediatric Cardiologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 39 years. Dr. Schneider is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 16 other conditions, according to our data. His clinical expertise encompasses Ventricular Septal Defects, Bicuspid Aortic Valve, Patent Ductus Arteriosus, and Pulmonary Artery Agenesis. Dr. Schneider is board certified in American Board Of Pediatrics, Pediatric Cardiology - 1994.

    Experienced in Danon Disease
    Neuroradiology | Neuromusculoskeletal Medicine | Neurology
    Experienced in Danon Disease
    Neuroradiology | Neuromusculoskeletal Medicine | Neurology

    Corewell Health Grand Rapids Hospitals Neurology - 2750 E Beltline Ave NE

    2750 East Beltline Avenue Northeast, 
    Grand Rapids, MI 
     (5.4 miles away)
    Experience:
    26+ years
    Languages Spoken:
    English
    Accepting New Patients

    Paul Twydell is a Neuromusculoskeletal Medicine specialist and a Neurologist practicing medicine in Grand Rapids, Michigan. He has been practicing medicine for over 26 years. Dr. Twydell is rated as an Experienced provider by MediFind in the treatment of Danon Disease. He is also highly rated in 31 other conditions, according to our data. His clinical expertise encompasses Myasthenia Gravis, Monomelic Amyotrophy, Chronic Inflammatory Demyelinating Polyneuropathy, and Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease). Dr. Twydell is board certified in American Board Of Psychiatry And Neurology. Dr. Twydell is currently accepting new patients.

    Showing 1-6 of 6

    Last Updated: 04/28/2026

    What is the definition of Danon Disease?

    Danon disease is a condition characterized by weakening of the heart muscle (cardiomyopathy); weakening of the muscles used for movement, called skeletal muscles (myopathy); and intellectual disabilities. People with Danon disease may develop the condition at different ages. Signs and symptoms of this condition appear about 15 years earlier in males than in females. Males first experience health problems in childhood or adolescence; without treatment, these individuals typically live into early adulthood. Females start experiencing health problems in early adulthood and typically survive into mid-adulthood without treatment.

    When should I see a Danon Disease doctor near Grand Rapids, MI?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Danon Disease doctor near Grand Rapids, MI?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Danon Disease doctors near Grand Rapids, MI?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Danon Disease doctors near Grand Rapids, MI?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Danon Disease doctor near Grand Rapids, MI?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Danon Disease doctor search results page. 

    Why is it important to get a second opinion from a different Danon Disease doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Danon Disease doctor near Grand Rapids, MI?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Danon Disease doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Danon Disease doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Danon Disease doctors near Grand Rapids, MI?

    Look for the filter feature on the left side of the Danon Disease doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Danon Disease doctor that offers video calls?

    Look for the filter feature on the left-side of the Danon Disease doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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